The Oxygen team phoned me! I could have a face to face meeting. But I had to go in to Aberdeen Royal Infirmary. It is a long trek to get there and then, well, its a hospital. She then said I could have a face meeting on the computer. So I said "Yes please."
The DP then took the phone to give my email address to facilitate this to be set up. He talked about the struggles I was having. I was told way back that I was not to use oxygen when sitting down. So I hadn't. She said that was before the prescription for 15 hours oxygen daily was set following the tests on the arterial blood to see how much oxygen there was in there. So sitting down of course I could use the oxygen as no way would I get to 15 hours if I didnt. DOH.
I genuinely had thought before that that I was at the end stages of the disease the way I was struggling. What a wonderful feeling swept over me! So if I feel breathless eating a meal, sitting computing feel breathless I can just use the oxygen...........So I already have and will continue to do so. I feel WONDERFUL. It now sounds really silly but I would put the oxygen in and then go for a walk round the house just so I wasnt using it sat down!
So the new regime is started. Before the end of the year I will have the face time on the computer and report in to the same wonderful person I spoke to today from the Oxygen team. Isnt our NHS wonderful.
Before the phone call we went to the Prom. No wind, no rain and a tad warmer so I did the full walk.
One of the two Surfers.
The Gull gang.
Now I just need that jab.